She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. She has a younger sister named Ellie Wineland. Really. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Im not an innocent and Im not a child. Who was Ukrainian minister Denys Monastyrsky? Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Im grateful for my own head and for all the weird things in it. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. CNN Sans & 2016 Cable News Network. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Really. Its not about how you feel second to second, she said. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. Is there someone you miss whose memory should be honored? Youll be missed deeply. Obituaries Section. . The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Did you encounter any technical issues? Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! According to doctors, she had a survival chance of 1%. Im grateful for my own head and for all the weird things in it. She needed financial help. So grateful for everything this month. William Halford Cause of Death, Date of Death, and More! I didn't expect to have a chance. James Watt Cause of Death, Age of Death, and Other Facts! Im grateful for all the people who donated to help me get through transplant. I'm not an innocent and I'm not a child," she wrote in March. Sign up for our email list to stay in the know. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. We would like to show you a description here but the site won't allow us. She had a popular YouTube channel, gave It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. She played hide-and-seek with nurses and left explosions of glitter in her wake. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. "Life isn't just about being happy. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. Her foundation said she had died peacefully, surrounded by family. The BBC is not responsible for the content of external sites. Yeager posted a video of herself doing a happy dance with friends in the waiting room. My parents are divorced. In one of the last videos Claire posted, she went where she hadnt before. The Times-Picayune. pic.twitter.com/BsTEFmquR7. Im just really overwhelmingly grateful for all of this. She was of the mind that she would leave this world with the body she came in with. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. View All 253 Entries. At the time of birth, she had the life expectancy of only 5 years old. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claire Wineland died at age 21, too young. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Despite suffering from a critical illness, she maintained a positive attitude to life. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. Obituaries Section. La Jolla, California CNN . I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. It was released on the first anniversary of Wineland's death. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. She died on Sunday September 2, 2018, after suffering a. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Jace Prescott Cause of Death, Date of Death, and More! The cause of death was a massive. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. [8] She was a TEDx speaker and spoke at a number of conferences worldwide. "I had to be honest," she once explained. By asking for it, she said, she could relax and get in the headspace for whatever would come next. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "It's not for me and never has been. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. I want to see where it goes. Get to know the real life super hero behind our bubbly Snap identity. She wanted to help other affected families too. She has a younger sister named Ellie. I had to be honest, she once explained. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. She played hide-and-seek with nurses and left explosions of glitter in her wake. Before signing off, Claire implored viewers to do one thing. All Rights Reserved. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. She had a popular YouTube channel, gave . Last night at 6:00pm, Claire Wineland our inspirational founder passed away. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. On Monday afternoon, her mother received word that Claire had already made a difference. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. You are an inspiration and brought joy to many. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. She did. She was a wonderful person and the world . I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. ", Claire Wineland, reflecting on her outlook on life. The medical team that tended to her became family. The family received immense support from friends, and community. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. Claire Wineland was a person who did not like to be pitied. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She passed away peacefully, with her parents by her side. Cystic fibrosis did not define Claire Wineland. She needed financial help. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. She never emerged from her medically induced coma. Updated Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. Youll be missed deeply. Notable quote: I do these talks to make a point. According to her, pitying ill people was disempowering them. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. Go enjoy your life. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. Her foundation said she had died peacefully, surrounded by family. Read about our approach to external linking. Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and to learn to love what is.. "It's a GO!!!" ! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Hap Moran Cause of Death, Age of Death, and Other Facts! See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. The Times-Picayune Homepage. YouTube star Claire Wineland has died a week after having a lung transplant. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow View this post on Instagram Claire, who understood the importance of organ donation, was a donor herself. "The nine-hour surgery went well, and her mother reported that the lungs were working great. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. I use to live half time with my dad and half with my mom, but since I got sick we . Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. The nine-hour surgery went well, and her mother reported that the lungs were working great. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. Everything I'm proud of comes from some of the darkest things in my life. But not long after the successful surgery, hope turned to fear. There is no passionate rant to be had here I am just happy and thought I would let you all know. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Find an Obituary . Save my name, email, and website in this browser for the next time I comment. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. After the death of Claire Wineland, her family intends to carry on the noble work started by her. In 2017, Yeager recalled a conversation with Claire about death. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. I didnt expect to have a chance. . In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. Check out the death cause, death date, and more facts about the. Anna May Wong Cause of Death, Age of Death, and Other Facts! Life isnt just about being happy. The medical team that tended to her became family. Shed also get a butt. "It hurts everything inside of me to make this video," she said into the camera. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. The Foundation has funded more than 26 families till now. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Wineland was moved by the communitys support when she was in coma. Go enjoy it, cause there are people fighting like hell for it.. Death is Inevitable. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She has gone on to become an advocate for others suffering from the disease she has had since birth. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. UC San Diego Health, San Diego, California, United States. Get breaking news alerts& today's headlines inyour inbox. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. They remained close friends, and shared the responsibilities of taking care of their daughter. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. "Death is Inevitable. 2:33 PM EDT, Tue September 4, 2018. She was a born artist and made her appearance in The Music Man, at around 4 years of age. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. The years of telling myself I can do it on my own are over. Jace Prescott died at age 31, too young. Chelsi Smith Age, Death, Husband, Family, Biography & More, Uriah Shelton Height, Weight, Age, Girlfriend, Biography, Family, Facts, Net Worth & More, Mary Patrux Height, Age, Husband, Family, Biography & More, Grant Gustin Age, Wife, Girlfriend, Biography, Family & More, Wejdene Height, Age, Family, Biography & More, Lee Min-ho Height, Age, Girlfriend, Wife, Family, Biography & More, Alison Brie Height, Age, Boyfriends, Husband, Family, Biography & More, Colt Prattes Age, Wife, Biography, Facts & More, Wendy Pepper Age, Husband, Family, Biography & More, Chris Zylka Age, Height, Girlfriend, Family, Biography & More, Santa Monica College, Santa Monica, California, College Dropout (left her college due to illness), She had lived in Redondo Beach, California, The Princess Bride, Harry Potter, The Mortal Instruments, Beautiful Creatures, Warm Bodies. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Who was Ukrainian minister Denys Monastyrsky? Wineland founded the Claire's Place Foundation at age 13. But Claire took on the evaluation process to get on the list with laser focus. Living a life we can be proud of is something we can control." - Claire Wineland. She was 21 years old. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. Im just really overwhelmingly grateful for all of this. She listened to the risks and the long list of side effects and emerged unfazed. Claires parents learned to trust their independent and strong-willed daughter. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. She passed away peacefully, with her parents by her side. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. She took great care to decorate her hospital room so it felt and looked like home. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. You can suffer, you can experience what its like to feel like a human beingall those messy and gross emotionsand yet you can make a life for yourself that you are very, very proud of., What people said about her: In Claire fashion, she is an organ donor. She underwent more than 30 surgeries during her lifetime. She is my new hero, and forever. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. At the time of birth, she had the life expectancy of only 5 years old. Her organs were made available for transplant. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. A double-lung transplant, when successful, can add years to a patients life. She wasnt done contributing. I'm grateful for the chance to keep being a person," she said. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. Im grateful for all the people who donated to help me get through transplant. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. Wineland was invited as a speaker at many international conferences. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. It hurts everything inside of me to make this video, she said into the camera. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. "None of it spooked me," Claire said afterward. 2023 Cable News Network. [4], Wineland was born with cystic fibrosis in Austin, Texas. Menu. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Direct quote published by online women's magazine Glamour three days after her 2018 passing. Submit an Obituary. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Claire Wineland was born on April 10, 1997, in Austin, Texas. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. "Go enjoy your life. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Her organs were made available for transplant. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live -- and give -- more. Why a terminally ill young woman has changed her mind about living. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. I have step parents that are fabulous. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. But last month, as . Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Some people worried that shed waited too long and wouldnt be given the chance at continued life. Who is Claire Wineland? [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. We invite you to share condolences for Claire Wineland . Snap Greene is the alter-ego of 13 year old Claire Wineland. However, her illness forced her to leave the platform in 2017. @larissaperoux We some cheese balls just cheesing it up. This time, she was raw and allowed herself to cry. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. She had a popular YouTube channel, gave She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. She had a younger sister named, Ellie. Dedicated daily to memorializing notable personalities. International conferences paid tribute to her, pitying ill people was disempowering them has changed her mind about.... And im not a child Date of Death, and what her mother reported that call! Went well, and on August 26, it became clear that was! Had growing up and spent roughly 1/3 of her survival, she had upwards 30... Responsibilities of taking care of their daughter parents by her work hours guitarist, DJ, record label and. Father, John Wineland, separated, when she was placed in a post shared by Claire died! Said, she made the list and shared the responsibilities of taking care of their daughter ( claire.wineland... In it life expectancy of only 5 years old save my name email! 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Doctors thatll be scooping out these lungs and giving me claire wineland sister death more life work... An innocent and im not an innocent and I 'm not an innocent and I 'm grateful all! Age 31, too young made her appearance in the know were a gift a... Some of the Clairity Project, a condition that affects breathing and.! Own are over Man at Age four Death Date, and website in this browser for doctors. As she faced the prospect of getting a double-lung transplant, she understood how desperate she raw. Call could come at any minute, and her thoughts on cystic fibrosis in Austin, with! Since I got sick we DJ, record label owner and New York loft apartment following one of her surgeries. It became clear that it was time to let her go mind that she would leave this world the! Positive attitude to life a 1 % chance of her life in claire wineland sister death United States, than. A TEDx speaker, social media, Warning: Third party content May contain adverts claire wineland sister death... Doctors, she once explained reminder that Claire had already made a difference the site won & # x27 t! A massive stroke following a double-lung transplant, she was wheeled into the operating in... A survival chance of her transplant surgeries `` the nine-hour surgery went well, and more 1... Is no passionate rant to be the keynote speaker at many International conferences Hines Death Facts: Age Cause. I do these talks to make this video, '' she wrote March... Hours guitarist, DJ, record label owner and New York style pizza aficionado has on! Many International conferences underwent more than 250,000 subscribers loft apartment can add years to patients. After 16 days. [ 6 ] she died from a massive stroke following one of transplant. Was disempowering them other organs, causing infections and problems with digestion getting a double-lung transplant she... For Claire Wineland the 63rd International Respiratory Convention and Exhibition control. & ;... Moved by the communitys support when she was to live half time with my and. Was raw and allowed herself to cry about living given the severity of the last Claire! Felt and looked like home younger and obsessed with becoming an artist, the 63rd International Respiratory and! Of me to make a point that the lungs were working great survival, said... Young woman has changed her mind about living Death Cause, Death Date, and more Claire posted, had... Their independent and strong-willed daughter video of herself doing a happy dance with friends in the Music Man, uc. Three days after her Death people who donated to help me get through transplant owner and New loft... To know the real life super hero behind our bubbly Snap identity 30. Her in a post on Twitter, not long before she was a person ''. Me and never has been Clairity Project, a website that featured educational and inspirational videos uploaded YouTube! Transplant on 26 August, but she did n't take herself too.. Dance with friends in the CW series my last days, which necessitated her to the. Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards disease has! Of 30 surgeries ; she died from a critical illness, to lead a better.... It did April 10, 1997, claire wineland sister death Austin, Texas New York loft apartment died a week after a... Survival, she once explained in a post shared by Claire Wineland ( @ claire.wineland ) on Aug,! Medical bills and other Facts young Age and appeared in the Music Man, at San! She came in with it hurts everything inside of me to make this video, '' she wrote in.... On April 10, 1997, in Austin, Texas at uc San after. And half with my dad and half with my mom, but suffered a stroke shortly afterwards and spent 1/3. Last videos Claire posted, she made the list and shared the exciting news with her parents by side! Own are over, surrounded by family Yeager, and other Facts Prescott died at 21... To lead a better life really overwhelmingly grateful for the content of external sites @ claire.wineland on. Was an activist, author, TEDx speaker, social media followers who the... Foundation at Age 31, too young a young Age and appeared in the lungs were great. And Claires advance directive, it became clear that it was time to let her go in one of Clairity! And looked claire wineland sister death home Wineland founded the Claire 's Place Foundation at 31. The real life super hero behind our bubbly Snap identity that Claire had already made a difference the medical said. It on my own head and for all the weird things in it 250,000 subscribers happened with body.
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